This article offers a person-centred analysis that closely attends to lives shaped by cognitive disability in Uganda. It reflects on the most widely used Ugandan term for disability, obulemu, which literally means ‘state of failure’. Ugandans with cognitive disabilities are often perceived as failed people (abalemu) insofar as they depart from dominant scripts for being human. Yet departures are also beginnings, and I attempt to think failure otherwise. Rather than understand these supposed failures in negative terms – as loss and diminishment of collective and personal possibilities – I focus on the possibilities of failure, tracing what arises around ‘failed people’ in terms of therapeutics, care and personhood. The article intervenes in a wider anthropological conversation about personhood. Rather than privileging cultural concepts of the person or the successful social realization of personhood, as much of that conversation does, the article takes inspiration from Meyer Fortes and makes ‘failures’ of personhood central.
Personhood and Cognitive Disability in Urban Uganda
For an Anthropology of Cognitive Disability
Patrick McKearney and Tyler Zoanni
How can we study significant cognitive differences within social groups anthropologically? Attempting to do so challenges some of the discipline’s most cherished methodological, analytical and ethical commitments, raising questions about how we understand difference, both between and within societies. Such challenges both explain the neglect of the topic up until now and suggest its scholarly potential. In this article, we move to lay the groundwork for an anthropology that takes seriously cognitive differences (such as autism, dementia and intellectual disability), as well as their potentially disabling consequences. We ask: what kind of cross-cultural reality does cognitive variation have, and how problematic are such differences for those who live with them? We spell out at greater length some of the difficulties involved in developing this conversation, attempt to address these issues, and delineate some of the important benefits that follow from doing so.