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Ways of ‘Being With’

Caring for Dying Patients at the Height of the COVID-19 Pandemic

Annelieke Driessen, Erica Borgstrom, and Simon Cohn

been to highlight the inequality in such relationships. However, establishing intimacy seems apt to describe a key quality of specialist palliative care which focusses on patients who are at the end of life. Central to this is building trust and rapport

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‘Takin’ It One Day at a Time’

(Not) Anticipating as Moral Project

Devin Flaherty

end of life on St. Croix (for a comprehensive description of this study, see Flaherty 2018a ). A grounding premise for this article is that despite the similarity of this situation across families, there is much to learn from how particular

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Elizabeth F. S. Roberts

Sharon Kaufman, And a time to die: How American hospitals shape the end of life. New York: Scribner, 2004, 416 pp., ISBN 0-743-26476-2.

Lesley A. A. Sharp, Strange harvest: Organ transplants, denatured bodies, and the transformed self. Berkeley: University of California Press, 2006, 322 pp., ISBN 0-520-24786-8.

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Lionel Blue


In this article, Lionel Blue contemplates approaching the end of life. The rabbinic tradition describes this world as a ‘prozdor’, a corridor to the world to come. We are ‘in between’ creations, with a toehold in heaven, yet intimations of heaven can be found in this life. As for dying, that can be a messy business. ‘I do not like the pain which accompanies all transformation.’ Dying is very different in the experience of those who are left behind, who wish to hold on to the one who is dying, whereas the latter may need silent companionship and permission to depart. Lionel offers some personal stratagems for dealing with old age. Indulge yourself and treat yourself insofar as your medication allows. Treasure friendships. Keep up your conversation with God.

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Nicola Pasini

In Italy, a public debate about the death of Eluana Englaro was set in

motion that eventually extended itself to all of the problems related

to living wills. The controversy that developed around these events

represents a case of applied public ethics that involved moral problems

related to public policy decisions. The debate demonstrates

how such (bio)ethical questions have now become priorities on

the political agenda. Decision-makers are constantly called upon to

decide and intervene in very complex and difficult environments,

both at the beginning of life (such as the debate over Law No. 40

in relation to assisted fertilization and that relative to the abortion

pill RU-486) and at the end of life. Until only a short time ago, these

environments were strictly relegated to an individual, family, or

medical dimension.

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Denise Turner and Bronwen Gillespie

distressing information. In a different story, Emma’s iPad is a ‘bloody miracle’ in navigating her terminal illness (105). Veronica’s story, by contrast, is characterised by the difficulties of communication at end of life. Having spent her entire career

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Mobilizing Disability Studies

A Critical Perspective

Kudzai Matereke

microcosm epitomizing governments’ array of responses to the pandemic. Throughout the world, social, economic, political, and cultural facets of life came to “a grinding halt.” 21 Newspaper articles chronicled the end oflife as we know it” 22 while

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Learning in Collaborative Moments

Practising Relating Differently with Dementia in Dialogue Meetings

Silke Hoppe, Laura Vermeulen, Annelieke Driessen, Els Roding, Marije de Groot, and Kristine Krause

how minority groups could be depicted without relying on stereotypes. 10 16-02-2017 End of life with dementia Natashe Lemos Dekker and Mieka Vroom touched on trust, powerlessness and uncertainty at the end of life with dementia. The group

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Anthropological Approaches to the Study of Children in the Middle East

Erika Friedl and Abderrahmane Moussaoui

globalised through modern sports and Internet games; where parental authority is dwindling yet a developing teen culture is prolonging dependencies of teens on parents; and where, at the other end of life, the care of the elderly is becoming a burden on the

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In Fortune Fair and Foul

Happiness and Care of the Self in Sir Kenelm Digby's Letter-Book In Praise of Venetia

Paula Barros

, see Keith Thomas, The Ends of Life: Roads to Fulfilment in Early Modern England (Oxford: Oxford University Press, 2009), 214–217. 26 LB III, 90. 27 LB I, 144. 28 Ibid., 139. 29 Ibid., 122. 30 Thomas, The Ends of Life , 217. 31 On